Although small in stature, Colwyn Wilton’s fighting spirit is larger than life.
He was born with a rare genetic condition called Mucopolysaccharidosis type VI (MPS type VI).
MPS type VI is a progressive condition that causes many tissues and organs to enlarge and become inflamed or scarred. Skeletal abnormalities, including short stature and joint deformities affecting mobility, are also common symptoms.
In 2017, after years of Enzyme Replacement Treatment and travelling to and from Adelaide, doctors decided Colwyn would undergo Hematopoietic stem cell transplantation in the form of a bone marrow transplant.
The bone marrow donation was made by Colwyn’s older sister Eva who was just 10 years old at the time.
The pair’s mother Marilyn said the transplant was life-changing for the whole family.
“Without the love and support of his sister he wouldn’t be here today. They are amazing kids,” She said proudly.
“The bone marrow transplant doesn’t cure his sickness or bring him out of the danger zone but we are hoping it helps him to live a longer and healthier lifestyle.
“It has given him the confidence and ability to achieve things that he wants to achieve.”
After hearing about Colwyn’s health struggles, the Port Pirie Make-A-Wish team helped make his dreams come true.
An avid Essendon supporter, Colwyn’s greatest wish was to meet his favourite players and to have an Essendon bedroom makeover.
On August 24, 2018, the passionate footy fan ran out onto Adelaide Oval with his beloved team before meeting the players and receiving a signed guernsey.
Although slightly nervous before stepping out in front of the big crowd, Colwyn’s nerves soon dissipated.
“Running with Dyson Heppell was amazing and getting a high five from my favourite player (Anthony McDonald Tipungwuti) was great,” Cowlyn said.
But it didn’t end there, a few weeks ago the Make-A-Wish team travelled to Leigh Creek to complete their mission. Colwyn’s Bombers bedroom makeover was completed with a new bed, quilt, posters, TV and curtains – just to name a few.
“He was just over the moon when it all happened,” Marilyn said. “He could have asked for anything like going to Movie World or something you know. But he wanted his own room where he could walk in and see every day and every night what his wish was and what he deserves.
“Make-A-Wish do a fantastic job and me and my family can’t thank them enough. They were tireless with their hard work and planning to make his wish come true.”
After moving from Port Augusta back to Country in Leigh Creek, Marilyn said Colwyn’s health and outlook have greatly improved.
In the future, the family hopes to take Colwyn on a trip to Melbourne to see his beloved Bombers play at their home ground.